After almost a year of tests, tests, and more tests, and belly pain, belly pain, and more belly pain, and poop, poop, and more poop, we have a clue. A couple of the 4yo’s tests came back indicating that he may actually have a lactose issue. No? Really? I’ve been saying from the beginning that it’s a completely plausible scenario, even though we’ve not had any big flashing arrows indicating such an issue.
I’ve told the doctors from day one that I’m lactose intolerant, and so is my 9yo. I’ve also read that in some people a lactose issue can make them constipated, not the other way around. My kid has pretty much been constipated since birth. He’s had milk products pretty much since birth because I can tolerate some things, so even while breastfeeding, my diet was not lactose free. He projectile vomited breast milk. It was all chalked up to his reflux and being a preemie.
Why was it ruled out before the stool testing? There was no distinct pattern to his reactions and foods he ate. The biopsies from both endoscopies showed no lactose issues, BUT the thing about these biopsies is they take a piece of tissue the size of an M&M or smaller, and if they don’t happen to grab a piece of tissue affected, then of course the results will be negative. Blood allergy tests showed nada. Patch testing showed nothing either. I think patch testing is a bunch of crap personally. They take the offending foods, and put a piece of it on your child’s skin and leave it under these discs for a few days then measure the reaction at 3 days then 5 days. All that tells them is if your child’s skin is sensitive to that food. It does NOT tell you if your child will have a systemic reaction to the food, in my opinion. My kid has eczema. His skin was more irritated by the tape to keep all those stupid discs on than anything else.
So, what’s the plan? We’re going to try some Benefiber to get him “going,” and I’m going to keep a food diary (again) to see if there isn’t a correlation even if it’s days down the road now that we have an idea of what we’re looking for and not just stabbing in the dark.
During the appointment yesterday, I was good. When the doctor mentioned lactose, I simply said, “Well, that’s totally plausible since big brother and I have issues with it.” I refrained from saying, “DUH! NO? Really? You think I could be a possibility?” You would have been proud at my restraint.