Today, there was a plot against my health. My kids and the military health system are determined to see who can give me an aneurysm first. Between allergies and the full moon this week, my kids have been hopped up higher than the Energizer bunny tweaking on meth.
Cue my husband coming home from work. He printed out some paperwork that was emailed to him so I could have a copy for my records. It’s WRONG! No wonder I’m getting shit fits from EFMP and ECHO about getting services for my younger son. It’s all comepltely WRONG! One page says he needs no services, then the next says he needs speech, OT, and ABA (which THIS is what he needs). Then yet another page says he only needs a visit once a week. ONCE a week? That’s what he’s getting now through the local Intermediate Unit who handles the special needs kids and the services they need, and it’s NOT enough! GAH! But wait! Then yet another page didn’t even get sent. Then one with the signature of the EFMP coordinator. OH! OH! OH! And, no one from the pediatrician’s office bothered to send a copy of the neurologist’s report they’ve had since JANUARY. January. Are you kidding me?
The best is yet to come.I know we’re filling this out about autism, but there’s also a section about asthma. It says my son has NOT been treated in the last 5 years. Cue Linda Blair Psycho-ish head spinning and pea soup spewing. Um, then why do we have a nebulizer? Why do I have to check is pulse ox every time he gets a bad cough? Why does he see the allergist for allergies and – wait for it – ASTHMA? I get it. It’s more paperwork. You know what? Boofuckinghoo. I have a lot of paperwork I get that I have to fill out on these kids too. I do it, and I do it correctly. I don’t pass the buck because maybe I didn’t feel like it that day. Needless to say I immediately called Tricare and changed the kids to another doctor in our clinic who was recommended by the neurologist’s office, and is NOT the pediatrician. Unfortunately, I STILL have to deal with the pediatrician because it’s her office that all of the EFMP and ECHO paperwork goes through for our post so my kids can get services.
So now on top of dealing with all the health stuff I have going on personally, I have to clean up the mess this doctor has made for me. A special needs mom just doesn’t have time for professionals to not do their jobs correctly, but it seems like these are the people who like to screw up my days the most.
About Amanda
I REALLY hate how effed up the system is. Sadly, I hate it. In both countries. :p
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oy, what a nightmare! I can’t believe they made such a mess for you
Now I KNOW that you are a true advocate for your kids and you do everything you can, so I know the screw up is definitely NOT on your end. I’m so sorry that you have to go through this. Is there anyone you can talk to on the military’s end who can straighten it out (I KNOW, I’m laughing as I type) so that you don’t have to do everything all over again or do the pediatrician’s office work, too?
You know I’m pulling for you and sending prayers and cyber hugs!!
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Oh Amanda. I’m sorry. What a big fat pain in the butt. I hope you can get it worked out and services set up properly. What an ass of a doctor.
It sucks I know. Everyone wants to complain about what your child can and can’t do or what they are doing wrong, but no one is willing to help. It is beyond frustrating and I am dealing with the same thing over here, only I also am dealing with trying to get the kids signed up for health insurance. That alone has turned into a four year battle.
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