I was informed yesterday that today is WORLD Autism Awareness Day. I guess yesterday was just a practice run? Just autism awareness in the US? I don’t know. Honestly, I’m still new to all of this. We’re just a little over a year since our oldest was diagnosed with Asperger’s Syndrome. Sure we were trying to cope as parents WAY before a year ago, but it was a year ago in January that we got a correct diagnosis, and were put on the correct path for therapies and information that would (and have) actually help us.
Some people refuse the blue because it’s associated with Autism Speaks, and the organization can be controversial. That’s fine. I turned my blog blue because most people who aren’t dealing with autism on a daily basis associate the blue with autism whether we like it or not. If it brings more awareness, then yay!
I’m not writing these autism articles for me. I’m already aware of autism thank you. I’m aware of is 24/7/365. There are days I’m so aware, that I want to punch autism in the face (For the record, not my kids. I want to hug them. The autism). If one more person gains a little more understanding for what we parents of kids with autism go through from my posts, then I have achieved my goal.
There’s our 4 year old. You know, the one who doesn’t sleep. Hasn’t really ever slept in his whole life which means I haven’t really slept in FOUR YEARS. Yeah. That one. Even after trying EVERYTHING to get the kid to sleep, and resorting to medication, the kid still wakes up at 5:30am. Even after trying every trick we know after that, the kid still wakes up at 5:30am. I am not a morning person. At 5:30am, it’s hard to convince me that the universe doesn’t hate me. Usually by 7am and some caffeine, it’s better. Depending on how many times I’ve already heard “Mom, Mom, Mom, Mom…” It also depends on what’s being repeated that day, and how many times I’ve heard that in the first hour we’re awake.
Our 9 year old gets fixated on topics. I swear he probably knows more about Star Wars than George Lucas at this point. Then there’s Legos. And Lego Star Wars. Now it’s Harry Potter. I know more about these topics than I ever wanted to know. Things I could’ve gone my whole lifetime not knowing and I would’ve been perfectly happy.
I think my (least) favorite trait is the spewing of irrelevant information at the most inopportune time. Like if my husband and I are talking about baseball for example, and then our oldest butts in and says something like, “My friend at school missed 2 on our math test today.” OK then. Not my kid. I really don’t care. Thanks for sharing, and butting into our conversation with irrelevant information.
Oh wait! I have one more. When our 9 year old is trying to ask us what something is, and he’s fixated on one way to describe what he’s trying to convey, and we have absofrikkenlutely no idea what he’s talking about. We ask other questions to try and get more information, but he just says the same thing over and over, louder. Dude. I heard you, but I didn’t understand you. I’m trying to figure out what it is you’re looking to find out. It’s like a bad version of “Who’s on First,” that ends with all parties involved frustrated, and a 9 year old who can’t understand why his parents just aren’t smart enough to figure out his cryptic descriptions.
I’m constantly aware of autism. Are you?