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Services Prescribed vs. Services Available

Did you have a good Friday? How did you spend your afternoon? I was going to go grocery shopping. Instead, I got the mail, and checked it as I always do to toss the catalogs and junk right there at the post office. That way there’s less paper coming into our home. I came across… read more »

The Dinner Dance

All couples have their dances. Ours is often dinner. There are days I don’t feel well, and there are days like yesterday, where I REALLY don’t feel well. My fibromyalgia is flaring, and quite frankly, kicking my ass. I have a migraine that wants to manifest, but sits in my right temple and my tense… read more »

School Transitions

We have both boys transitioning this year. Have I mentioned that? I probably have. It’s one of the things that’s been preoccupying my mind these days. Since our oldest wasn’t diagnosed until he was 8 1/2, these are firsts all around. We have the older child transitioning to middle school. Having a child in middle… read more »

And The Band Plays On…

Yesterday we had the honor of attending the Congressional briefing on Caring for Military Kids with Autism Act, HR 2288. I have so many people to thank before I start for making the day a success for our family. The accessibility office at the Capitol Visitor Center for working with us, and the Capitol Police… read more »

Knowledge is Power – IEPs

I found this great idea while Twitter and Facebook surfing waiting for the kids to get home from school. An IEP Meme. A way for those of us who have been through the process to share. I also plan on reading posts written by others to gain ideas as both of my boys trasition into… read more »

More Allergies

We had more allergy testing today for the 5yo. We tested for 46 foods. We found new allergies. In addition to peanuts, we can add almonds, oranges, and lobster to our list to avoid. We also need to monitor all tree nuts, citrus, and should just avoid all shellfish. What really leaves us scratching our heads is… read more »

A Second Fibromyalgia Opinion

2nd.md consult

Thank you to 2nd.MD for providing me with a $200 stipend to test-drive this revolutionary online medical service. I’ve been wanting a second opinion on my fibromyalgia for awhile, but rheumatologists that will accept my insruance in this area are few and far between. When I got a referral to one two years ago, there… read more »

Yes, We’re Special

Now click here and bug your congress people.  We will not let CMKAA H.R. 2288 die in committee. Failure is just not an option. Seriously. Do you think that a soldier who is deploying and has children on the autism spectrum should have the added stress that if something should happen and that soldier ends up medically… read more »

My Kids Aren’t Autistic. They’re Werewolves.

Wit and Wisdom From the Parents of Special Needs Kids

Watch Twitter every month during the week of the full moon, and you’ll see the same trend. The autism parents are talking about how their kids have lost it. There’s regression, extra tantrums, not sleeping, high energy, you name it. In our house, the boys get particularly moody. To the point I really wish Midol… read more »

Prematurity Awareness Day

RSV Infographic

Today is Preemie Awareness Day. Did you know that? I think it’s pretty cool that they get a day. Do you know a preemie? Do you know the risks preemies face, especially being born during cold/flu/RSV season? I have a preemie child. He’s now 5, but born at 35 weeks, 1 day, he was considered… read more »